ALL YOU WANT TO KNOW ABOUT CHIARI

 

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What IS Chiari Malformaition?

(Definition taken from the NINDS)

 

Chiari malformations (CMs) are structural defects in the cerebellum, the part of the brain that controls balance. When the indented bony space at the lower rear of the skull is smaller than normal, the cerebellum and brainstem can be pushed downward. The resulting pressure on the cerebellum can block the flow of cerebrospinal fluid (the liquid that surrounds and protects the brain and spinal cord) and can cause a range of symptoms including dizziness, muscle weakness, numbness, vision problems, headache, and problems with balance and coordination. There are three primary types of CM. The most common is Type I, which may not cause symptoms and is often found by accident during an examination for another condition. Type II (also called Arnold-Chiari malformation) is usually accompanied by a myelomeningocele-a form of spina bifida that occurs when the spinal canal and backbone do not close before birth, causing the spinal cord to protrude through an opening in the back. This can cause partial or complete paralysis below the spinal opening. Type III is the most serious form of CM, and causes severe neurological defects. Other conditions sometimes associated with CM include hydrocephalus, syringomyelia, and spinal curvature.

 

Chiari Malformation in Simpler Terms

In a nutshell the back of your brain extends out of your skull.  This causes a restriction in the flow of "brain juices" to your head. 
 

Treatments for Chiari Malformation

(Information taken from ASAP.org)

Surgical procedures to enlarge the posterior fossa are considered a treatment option for patients with the Chiari I Malformation. Techniques are quite diversified amongst neurosurgeons, and patient responses vary greatly. A successful surgery will alleviate pressure on the neural elements and may result in an improvement of symptoms. 

The decision to treat a Chiari Malformation surgically requires careful consultation between patient and physician. Factors to be considered are the patient's current neurological condition and progression of symptoms over a period of time.

 

Chiari Malformation Treatment in Simpler Terms

The surgery is called Decompression Surgery.  The basic process is that the doctors remove some of the base of your skull and part of the first couple of vertebra in order to "make room" for the brain juices" to flow freely.
 

Decompression Video

Would you like to see the actual decompression surgery being performed?  If so click HERE.  (Beware, video is graphic)

(Once the page opens click the "view live webcast" link.)

 

Do Not Fear

Believe me when I tell you, that what you read about the horrors of the decompression surgery are NOT the majority.  Studies suggest that 1 in 1000 people are born with Chiari Malformation.  That is approximately 300,000 people in the U.S. alone.

Now I am sure most of you have read in more than one place about someone having multiple surgeries and still are not better.  I am partially one of those people.  I've only had one surgery, but am no where's near being better.  I will almost guarantee that you have not read a story yet about someone that had Chiari and after the decompression surgery they were perfect.  This is not because these people do not exist, it's because they do not feel the need to tell their story.