|
Home
|
 |
Devin's Battle With Chiari Malformation |
|
|
What is Chiari Malformation (Arnold Chiari Malformation) Chiari Malformation is a malformation that may occur with development of the baby or in later life. The malformation consists of a protrusion of the bottom portion of the cerebellum into the upper portion of the spinal canal. This malformation can lead to headaches, arm or leg symptoms, or problems with the nerves that supply the head and neck. When appropriately diagnosed, treatment can consist of surgical decompression of the base of the brain. |
||
|
Michigan Chiari Malformation Awareness MONTH Information HERE! |
||
| Show your
support with a Chiari Awareness wristband. These wristbands fit any wrist
and easily stretch if needed.
|
DONATIONS ACCEPTED HERE |
The cost of these
wristbands are 4.00 each which includes shipping and handling! Lets show our color (PURPLE) and at the same time spread awareness so we can get the proper treatment and medical knowledge that we need! |
|
Thank you for visiting my site. My goal is to spread Chiari Malformation awareness, and to encourage through inspiration to others like myself, that there is support, help, and a friend to lend a supportive hand. Please take the time to visit the other websites that I have included on my Favorite Links page. You are not alone in this battle. WE are a team. |
||
|
Please remember that I am always available for contact! Send me an email...and I will get back to you, shortly....Whether you want me to call you or simply write back. I feel so blessed for all of the Chiari friends that have been brought into my life this year, As well as old friends that have taken the time to contact me! It means more than words can express! |
||
|
GREAT BOOK by Dr. Raphael D'Alonzo Contents Under Pressure This book details Mr. D'Alonzo's long battle with Chiari Malformation and all proceeds go to help finding a cure for Chiari Malformation. Please purchase and read this book if someone you know or love is affected with Chiari, it will help you better understand what they are going through and how to better support them. |
||
4-25-2006
Hi my name is Devin I am 26 years old and live in Ortonville, Michigan. I am building this site to help raise awareness about Chiari Malformation. I am married, my husband's name is Christopher and I have 8 year old twins, Paige (girl) and Micah (boy). These 3 are the most important people in my life, my support team. I will be updating this site frequently as it is still in it's building stages. If you are here because you have this condition and are trying to do as much research as possible, as I did, then there is one VERY important piece of advice that I would like to give you. If you listen to nothing else, please follow this bit of research advice. Everyone's battle with Chiari is different. Although we may all have some of the same symptoms, they may not be for the same reasons. We ALL heal differently. Our bodies all react differently to the decompression procedure. Although you will ask questions to fellow Chiari patients, as you should, remember that they are not doctors, and are only speaking from their own experiences. DO NOT take their diagnosis as medical advice. If you have concerns about any part of your recovery or surgery ALWAYS consult your doctor. There is no reason to get scared and worried until you hear your doctor tell you there is a problem. This is where I went wrong. Use the forums and blogs to educate yourself and learn which questions you should ask your doctor.
Together we can make a difference! ~ Devin~
HAPPINESS
Don't forget to sign my guest book and to visit Chiari Champs Message Board
Special thank you to Dr. Grain, Dr. Cohen, & Dr. Marshall !!You three are amazing doctors and I appreciate you each leading me to a proper diagnosis & in the right direction.
Click on the image above to help support research for Chiari Malformation
